Bracelets For Bravery
I started Bracelets for Bravery about 6 months after the passing of my only child, my daughter Haley Jean. Like me, she was born with Osteogenesis Imperfecta also referred to as brittle bones disease. OI is a genetic disorder characterized by fragile bones that break or fracture with little and often times no trauma at all. She also had Respiratory Disorder, which is common with OI. Because of this, she spent a vast majority of her life in and out of Rush University’s PICU here in Chicago. As a mother to a child with Special Needs, I understood the hardships that came along with the lifestyle. You feel isolated, alone as if this struggle is happening to only you. Haley Jean inspired this project by her strength, charismatic innocence and infectious smile. After every health scare, she’d come through the end of the tunnel unscathed and as always, that resilience simply radiated. As a Special Needs mom, I wanted to do something special just for that mom. In receipt of of a handmade bracelet, it means that I acknowledge that same resilience in that mom, that I hear the pain and fear in her heart and that I understand. Thinking back, this life can be quite chaotic, you want to make the right decisions for your children. Sometimes those decisions can determine life or death. You want to know that you’re doing the very best you can and not that you look for validation from others, hearing it eases your mind. I see this in every Special Needs mom and want to acknowledge her in a very special unique way. These same qualities that my Haley Jean embodied are within that mom and child. NO bracelet is EVER the same. Every mom gets a one of a kind piece to emphasize individuality of the recipient and their journey. And so that the recipient feels extra special knowing that no one else has this piece but her.
Here’s a couple links to my social media…
I began blogging about life as a single mom with a disability, parenting a child with Special Needs. Now it’s about life after her “Trip to Heaven” and my struggling to cope.