In the meantime, I'm working on gaining my strength back so that I can help others in my situation. I'd like to share my health experiences with someone in a similar situation as me. Mentor others who feel hopeless & scared. While I was one of Rush's first patients pregnant with OI, the journey was uncertain. 2 years later, I [we] know so much more about my body, what to expect & decision making tactics.
Before I sign off, I wanted to share this photo with everyone. It is the first & last time I held her in my arms. If I take a deep breath & close my eyes I can feel her pressed against me, I can smell her innocence. If I could do it all over again I would..No regrets, just love. And although I'm not sure what the future holds, I know that my body cannot bare the brunt of carrying a child again. I may never experience it again...But for what it was worth, I wouldn't trade the experience for ANYTHING in this world..I envy those who can.. No matter where I am in the world, my heart will beat for her .I hope to see her tonight in my dreams..:(
"I'm Gonna Wrap Myself in Paper I'm Gonna Dap Myself with Glue Stick Some Stamps on Top of My Head I'm Gonna Mail Myself to you" |
By the way..;)
"I'd rather have a 2yr of wonderful, than a lifetime of nothing special"
ReplyDeleteHaley had the best mom a princess could ever ask for & she kew it😍
Your pain is my pain & i thank you for bringing Zue Zue into our lives..
Luv you sis, we are here for you always😘
There aren't enough words to explain the gratitude you've all shown us from the beginning..Although I am her mother, the loss was shared equally among us. I'm so happy to have been able to share her with you & even more grateful that she brought you immense joy. I have THE BEST FAMILY in the world...I thank you, with all that I am ;)
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