Saturday, October 24, 2015

Greetings....

Nothing really new to report today....Just wanted to share my GoFundMe update with everyone & re-post a couple other links as reminders... I'll be back soon with more input & discussion about what's on the upcoming menu..In the meantime I've found more comfort in laughter, creativity & fellowship with those who love me. Some days are harder to smile than others, but I manage somehow.... I hope all is well with everyone....Be kind always :) <3

The usual....LOL
https://www.gofundme.com/6p5vb0

Check out my "New Wheels"....Hilarious :)
https://www.youtube.com/watch?v=UlvMesl32W4

Please read & comment if you can....Also, donations of any amount are welcomed to keep Audacity Magazine up & running. Proceeds go toward payment of guest writers & contributors.
http://www.audacitymagazine.com/mom-and-baby-no-regrets/

Please "Like" & Share
https://www.facebook.com/HoorayForHaleyJean



Tuesday, October 6, 2015

No Regrets...

Hello family, friends & strangers!!! For the past couple months I've been working on an article for Audacity Magazine, an online magazine that emphasizes on disability awareness, advocacy & the everyday lifestyles of people with disabilities. This article focuses on my life before, during & after motherhood & my personal battles with relationships, strength, determination & love. Please read & share the link, Also leave a comment so the publisher will see your interest & I'll be asked to contribute again in the near future...;)

http://www.audacitymagazine.com/mom-and-baby-no-regrets/


By the way, please donate any amount you can to Audacity Magazine. Funds go towards paying guest writers, like myself for contributing articles. Many thanks in advance!



Also here's the link to https://www.facebook.com/HoorayForHaleyJean

Tuesday, September 29, 2015

Update...

Many have asked what have I been up to....Well here's one; Painting!! I've found solace in a paintbrush & motivated by creativity. I think of her with each stroke of the brush & each bead I string....She is my muse, my darling...My blood <3

By the way, please view, Like & share the link below :)

Thursday, September 24, 2015

Finding "Me" Again...

Greetings family, friends & strangers afar.....Goodness it's been a long time since I've blogged. I"m sure you've all wondered where I've been & what I've been up to. The truth is nothing else much has changed. Aside from finding things that will keep my mind occupied theres nothing else worth talking about. Finally started on filling out "Thank You" cards for those who signed the book at her services. It's been months but I couldn't do it until now. Painting has gotten more easy & therapeutic so the more I do it, the better I feel. However, unfortunately I've become more withdrawn, secluded. Staying home in my own space, alone seems more easy & safe for me. I am also dealing with more physical pain & working with my home care providers to get a good pain regimen going. It's rather difficult considering I have so much emotional pain as well....Still haven't started working yet, I guess no one wants to hire me for being away for so long. I even explained  [briefly] on my resume the reason for my hiatus. I hope it finds the right heart to give me that chance I so desperately need..I don't know who I am anymore or what my purpose is. I hope this process allows me to find myself again...To love myself again.....

So anyhow since my Haley Jean's trip to Heaven, its provided me with lots of idle time on my hands. Forcing me to think constantly day in & day out, I realized that it's imperative to keep her name & legacy alive in a positive way. I've come up with 'Bracelets for Bravery'. These handmade beaded bracelets symbolize all that Haley Jean embodied; courage, strength, tenacity, bravery & most of all Love. I'm choosing people with children with special needs to gift them to, as well as those who's lost a child. Caring for a child with special needs entails a great deal of courage & so does losing one. The aftermath of losing a child who was long-suffering is an unbearable journey. These bright, vivid colors also exemplify her personality; bubbly, happy & full of life. Her eyes big & bright like glass marbles you could get lost just staring into them, her smile so infectious, convincing you that all is well in the world. These bracelets are a reminder of all she epitomized.  When I make these bracelets this is what I think of. I'm so motivated by this type of creativity, somehow feeling rejuvenated when I'm beading. Especially for this reason. Although she's not here, strangely I sense her spirit. Fun & whimsical charms bring such excitement to each piece, not to mention the courageous childs' initial . I have a couple other projects I'm working on but it's too soon to dish. Just stay tuned.....  Thank you for being patient with me. I cant begin to tell you just how much this truly means to not only me but my family as well. We love you all dearly...;)



By the way...;)


Wednesday, August 19, 2015

"GoFundMe"...

Hello friends, family & strangers alike....Just a quick reminder to share & contribute if you can to my campaign to help reach my goal. I am excited to report that I received an anonymous donation today from a total stranger, I'm very thankful for their kindness.  Anyhow, not feeling well this evening. Just another lonely & sleepless night, anxiously awaiting the morning sun. Haven't had much to write about lately but mostly my hiatus is due to writers block. So my apologies for this short post. Please bare with me during my darkness. Everyone says there's a flicker of light in the midst of darkness. Unfortunately I don't see how that can be remotely possible but I hope they're right. God Bless...

http://www.gofundme.com/6p5vb0



https://www.facebook.com/HoorayForHaleyJean

Sunday, June 14, 2015

A Motherless Child, A Childless Mother...

Have you ever went through life with blinders on but didn't know it until you're forced to evaluate yourself in "lifes" mirror? Well that's what I'm going through right now. I'ts humiliating being idle, sleeping til 2 or 3pm, looking for something to do. After an hour or of searching for a task all you come up with is re-stocking the the bathroom shelf with fresh folded towels, mating socks & shoes, comparing dark roast to medium blend coffee all while crying....hoping no one hears you. I wonder why me, I have no mother or a child so now my life seems so pointless.....I can't see anything but darkness. Painting has been helping & rather soothing. Since my finances have declined significantly, I can't even afford to buy supplies anymore. Beading as well has been something I've worked on to keep me occupied & explore my creative side. Just started Origami Paper folding....Kinda relaxing too.

They say God works mysteriously, that he sees the end from the beginning. How does He work this way without warning us of the inevitable? Not that I'm questioning His logic & Hand, but I just can't help feeling cheated out of what I thought was the greatest gift; Motherhood. Looks like I'll never have that chance again...Deciding to continue with a pregnancy that had obvious obstacles wasn't a hard one to make because I'm no novice to obstacles. I didn't know how to walk away from it because I wasn't built that way. As I have said in the past I don't regret that decision, rather I've learned to embrace it. Just recently heard a this saying, if you can't hide it, celebrate it....I've done that all my life, in fact that is the very premise of my life..That same fabric of embrace that has groomed me to the person I am today. It's probably why others may not understand my thinking or course of action that I take/taken during certain circumstances.

 As I am writing this blog entry my favorite televangelist Joel Osteen comes on. He said that people aren't born with problems because of their sins...It's so that God can give great glory at the expense of my enemies. I know that God doesn't make mistakes, that we're all here on borrowed time. We are here as a testimony to God's word, not for ourselves. I've always wanted to use my situation as a lesson for others, in attempt to provide some level of hope to those that are discouraged. I want to help others but I don't know how, my heart aches. I'm deeply saddened, What will I do??

In the meantime I will speak to God to ask Him for answers & direct my steps because I've never been so lost in my entire life until now. Not being able to hold & kiss her hurts my soul, so badly that I can't explain it. I can't see my way out of this depression. What will I do? How can be of assistance to anyone if I can't even help myself?.... :'(

By the way...;)


Thursday, June 11, 2015

A New "Normal"...

OI sure has a way of ruining any aspect of a potential good day. This morning while making breakfast, I sneezed & cracked a rib under my right breast. It shattered any plans I had for the day, such as going out for a haircut. I've lived with OI my entire life & have learned to adjust to it's inconsistencies & sudden obstacles. But lately life seems to have taken a liking to beating down & keeping me there. This stage in my life is the first time I've thrown a pitty-party for this long. I feel so beat down, defeated...useless. I'm writing this because I want to share the aftermath of what life is like....alone. Alone is kinda where I want to be. I'm sad all the time. I want to wallow in this sadness alone because I don't think it's fair to transfer my emotions to others.

So as you can tell today isn't a good day afterall. Typically I embrace my situation simply because this is my normal, however now this my "new" normal. I'm learning to cope without her & it's not going well. To add to my heartache I learned that her Palliative home care nurse Matt Hirshfeld died just days after her services. The shock of this devastating news sent me into an emotional rollercoaster all over again. I couldn't believe the news, it literally felt like a dream. I had no idea that he was ill so that alone caught me by surprise. He was always perky, upbeat & jubilant. He loved his babies & that showed in the way he cared for them. He was more than just Haley Jean's caregiver, he was our friend. He is sorely missed.

When I think of all the fascinating people we've met during this journey, it saddens me that those friendships are no more. Often times I wan to call or text the team to say hello but I think about how that may not be the best idea. They are professionals & since she's no longer their patient it's best move on & hold on to the memories.

As the days persist I will continue to keep myself busy as best I can. However, the next few days will be difficult becasue I'll need to relax as much as possible. I've got to get my ribs healed & pain-free & complete bedrest with meds is my only hope. It'll be very hard, considering that whenever I"m idle I have the hardest time coping with her absence. It forces you to think & remember when most days I don't want to because the pain is just too intense. Yesterday I stayed in bed embarassingly until 3pm. The amount of energy it takes to get up & out of bed to get freshened up is immeasurable. This isn't me, I don't know who this person is anymore. I don't know what "her" purpose in life is or if "she" even has one for that matter. I'm no happy with my reflection in the mirror. AS I said, it's my new "normal".....

I'll use this down time to paint, although I've run out of canvas It'll give me a reason to go to the craft store.  In the meantime here's a photo of my most recent project I found on Pinterest. Please pray that I get stronger than the day before. I'll be in touch...;)

By the way...;)